Links to Online Information about Mixed Connective Tissue Disease

The following links will take you to in depth internet information and articles about the disease symptoms that comprise MCTD, as well as current discussions on medications and health maintenance alternatives. Click on what interests you below.
Basic Information

Download our 2 page PDF [opens in new window]

  • The Mayo Clinic Web site has an information page on mixed connective tissue disease that can be found at the following link. Click on The Mayo Clinic to view the information page.
  • The Merck Manuals Online Medical Library provides information on this condition for patients and caregivers.
  • The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.

In Depth Information

*National Center for Advanced Translation Sciences: Genetic and Rare Diseases Information Center: citing sources (https://rarediseases.info.nih.gov/gard/7051/mixed-connective-tissue-disease/resources/1) (12/29/14)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Cleveland Clinic, Health Hub, Diseases and Conditions
Website: http://my.clevelandclinic.org/health/diseases_conditions/hic_Mixed_Connective_Tissue_Disease

Mayo Clinic, Discusses RNP Antibodies, IgG, Serum
Website:  http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/81357

National Organization of Rare Diseases, Overview and Comparisons
Website: https://rarediseases.org/rare-diseases/mixed-connective-tissue-disease-mctd/

MedicineNet.com, MCTD vs UCTD, Explanation of Differences
Website:   http://www.medicinenet.com/script/main/art.asp?articlekey=16955

The Arthritis Society, Overview
Website:   http://www.arthritis.ca/page.aspx?pid=939

MedicineNet.com, Overview of Mixed Connective Tissue Disease
Website:   http://www.medicinenet.com/mixed_connective_tissue_disease/article.htm

Molly’s Fund Fighting Lupus, Mixed Connective Tissue Disease: MCTD Explained
Website:
http://www.mollysfund.org/2014/06/mixed-connective-tissue-disease/

Physician’s Guide to Laboratory Test Selection and Interpretation
ARUP Consult
Website: www.arupconsult.com/Topics/MCTD.html

American College of Rheumatology
Website: Acrabstracts.org

 

Systemic Lupus Erythematosus

Mayo Clinic, S.L.E. Overview
Website: http://www.mayoclinic.org/diseases-conditions/lupus/basics/definition/con-20019676

Cleveland Clinic, General description of S.L.E.
Website: https://my.clevelandclinic.org/health/diseases_conditions/hic_Systemic_Lupus_Erythematosus

NIH U.S. National Library of Medicine, MedlinePlus, S.L.E. overview with images
Website: https://www.nlm.nih.gov/medlineplus/ency/article/000435.htm

Medscape, General overview of S.L.E. with diagnostic criteria
Website: http://emedicine.medscape.com/article/332244-overview

S.L.E. Lupus Foundation, General description with patient stories
Website: http://www.lupusny.org/about-lupus

Molly’s Fund Fighting Lupus, Quick Facts
Website: http://www.mollysfund.org/learn-about-lupus/what-is-lupus/

Yale Daily News, Discusses a new Yale study which may lead to cure for lupus
Website: http://yaledailynews.com/blog/2014/01/21

Medical News Today,  Discusses possible persoanlized treatment plans for autoimmune treatment based on the findings of researchers at the University of Alabama, Birmingham.
Website: http://www.medicalnewstoday.com/articles/271456.php

https://www.bing.com/images/search?q=lupus+skin+rashes&qpvt=lupus+skin+rashes&FORM=IGRE
https://www.healthline.com/health-slideshow/lupus-sun-exposure#12

Scleroderma

Mayo Clinic, General Description
Website: http://www.mayoclinic.org/diseases-conditions/scleroderma/basics/definition/con-20021378

Cleveland Clinic, An Overview
Website: https://my.clevelandclinic.org/health/diseases_conditions/hic_Scleroderma_An_Overview

American College of Rheumatology, General description and treatment options
Website: http://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Scleroderma

The Johns Hopkins Scleroderma Center, Understanding Scleroderma
Website: http://www.hopkinsscleroderma.org/scleroderma/

National Institute of Arthritis and Musculoskeletal and Skin Diseases, Fast Facts
Website: http://www.niams.nih.gov/Health_Info/Scleroderma/scleroderma_ff.asp

Scleroderma Foundation, Patient friendly overview
Website: http://www.scleroderma.org/site/PageNavigator/patients_whatis.html#.VfHmbtJVhBc

Overlapping Conditions in Systemic Sclerosis, From Scleroderma Foundation and Tamiko Katsumoto, M.D.
( watch on YouTube )

Polymyositis

Mayo Clinic, Definition and overview
Website: http://www.mayoclinic.org/diseases-conditions/polymyositis/basics/definition/con-20020710

Muscular Dystrophy Association, Fighting Muscle Disease, Basics of PM
Website: http://www.mda.org/disease/polymyositis/overview

Cleveland Clinic, Overview
Website: https://my.clevelandclinic.org/health/diseases_conditions/hic_Polymyositis

National Organization for Rare Diseases (NORD), Types of PM and overview
Website: https://rarediseases.org/rare-diseases/polymyositis/

Fibromyalgia

National Fibromyalgia Association, Home
Website: http://www.fmaware.org

Fibromyalgia Network, Fibromyalgia Treatment and Research News
Website: http://www.fmnetnews.com

Fibromyalgia and Chronic Fatigue Syndrome from VeryWell

Website: https://www.verywell.com/fibromyalgia-and-chronic-fatigue-4014724

 

 

Arthritis

Arthritis Foundation, Home
Website: http://www.arthritis.org

Alternative Medicine

National Center for Complementary and Alternative Medicine
National Institutes of Health
Website: http://nccam.nih.gov

Yahoo Helminthic Therapy Forum, Description of Helminthic Therapy
Website: http://www.foodsmatter.com/…/intro-helminths-scott.pdf

Sleep, Memory, Brain

The New York Times, How Exercise Can Help Us Sleep Better
Website: http://well.blogs.nytimes.com/2013/08/21

Everday Health, Autoimmune Disease and Sleep Problems, Madeline Vann, MPH
http://www.everydayhealth.com/autoimmune-disorders/getting-sleep-with-autoimmune-disease.aspx

Sleepdex, Sleep and the Immune System
Website: http://www.sleepdex.org/immune.htm

Medications

For a comprehensive list of medications used in Rheumatological Disease, please visit the Arthritis Foundation website @ http://www.arthritis.org/living-with-arthritis/treatments/medication/drug-guide/

The following are interesting articles and information found to enhance the basic material available there.

Plaquenil (hydroxychloroquine)

plaquenil chart

Description of Hydroxychloroquine including Fast facts and Points to remember.
Website: http://www.rheumatology.org/Practice/Clinical/Patients/Medications/Hydroxychloroquine_(Plaquenil)/

Johns Hopkins Lupus Center provides detailed patient information on Anti-Malarial Drugs
Website: http://www.hopkinslupus.org/?s=plaquenil

http://eyewiki.aao.org/Hydroxychloroquine_toxicity

http://www.retinalphysician.com/articleviewer.aspx?articleid=105383

Opiods

FDA Unveils Sweeping Changes to Opioid Policies – Published in Medscape – February 2016
Article: http://www.medscape.com/viewarticle/858411?nlid=99105_3901&src=wnl_newsalrt_160204_MSCPEDIT&uac=241180FT&impID=980959&faf=1

Methotrexate

NIH U.S. Library of Medicine, Medline Plus, Overview of methotrexate
Website: https://www.nlm.nih.gov/medlineplus/druginfo/meds/a682019.html

NCBI Pub Med, Folic acid and folinic acid for reducing side effects of methotrexate for Rheumatoid Arthritis. A research study.
Website: http://www.ncbi.nlm.nih.gov/pubmed/23728635

Health Central, How do Biologics Treat RA, Dr. Dana Jerome and Dr.Chris Morris
http://www.healthcentral.com/rheumatoid-arthritis/c/906496/164787/biologics-ra/?ap=818

http://info.sjogrens.org/conquering-sjogrens/bid/354124/The-Risk-of-Retinal-Toxicity-with-Plaquenil
https://www.hopkinslupus.org/lupus-treatment/lupus-medications/antimalarial-drugs/

Emotional Support

How to Support a Loved One With a Chronic Illness
https://themighty.com/2015/07/how-to-support-a-loved-one-with-a-chronic-or-invisible-illness/

https://themighty.com/2016/08/why-i-wont-apologize-for-having-fun-while-sick/

If you are on Facebook, please join us at MCTD-Mixed Connective Tissue Disease (closed group) where you can ask any question in private and have any number of people around the world answering your questions at any hour of the day or night with their own personal experience.

https://www.degosdisease.com/patients/stories/letter-doctor-those-chronic-diseases-read-it-its-so-valuable
https://healthresearchfunding.org/mixed-connective-tissue-disease-life-expectancy/

Check back often as we are continuously adding links to articles we find helpful in navigating Mixed Connective Tissue Disease